Hannah Devane is 3 years old and is allergic to food. Not certain specific foods. Hannah has a rare disorder that makes her allergic to every kind of food except a certain formula that her insurance company says is a “nutritional supplement.” Feeding Hannah costs $300 a week, but without the formula Hannah can’t eat enough to survive without doing permanent damage to her esophagus.

From Lower Hudson Online:

The Yorktown preschooler has a condition called eosinophilic esophagitis, a severe food allergy that causes a type of white blood cell to congregate in the esophagus, the tube that carries food from the mouth to the stomach, damaging the tissue when she eats.

A doctor-prescribed formula has allowed Hannah to grow to a robust 40 pounds, a normal weight for a child her age. Without it, Hannah could wind up with a feeding tube.

But the insurance program that covers her family through her father’s job as a New York City police lieutenant has stopped paying for the formula, which costs $1,200 a month. Food supplements and other over-the-counter items are not covered under the family’s insurance, the prescription plan administrator said.

Hannah’s father is now working 2 jobs to try to afford enough formula so that Hannah won’t end up on a feeding tube for the rest of her life. Boy, that’s sad.

Yorktown girl can eat only one thing: costly formula that insurance won’t cover [Lower Hudson Online via Fark]
(Photo:Stuart Bayer/The Journal News)

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